Mom sleeps more and more these days. Since she doesn't eat any more her body is in "starvation" mode. She's continuing to lose weight and her muscles continue to grow weaker and weaker. She can still bear weight, but not walk as her legs are too weak. Hospice brought in a hospital bed and she rests comfortably in that during the night. During the day she sits in her recliner and takes cat naps throughout the day. Someone is always with her should she need anything.
I miss her smile. I don't know if it's too much effort, or if there's nothing to smile about. We're not sure she understands what is happening or if she's just taking each day in stride. A dear friend from college is coming for a visit tomorrow and I'm hoping that will bring a smile to her face.
Thanks so much for the emails and words of encouragement. I pass each one along to mom and my brother.
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Jackie was diagnosed with Primary Progressive Aphasia about 6 years ago. This condition is also known as Frontal Temporal Dementia. Although considered dementia, this is not Alzheimer's disease. It affects the frontal lobes of the brain. As a result, Jackie's ability to communicate has been affected and she can no longer speak. She still knows loved ones for which we're thankful. She is now in end stage dementia and under the care of hospice in her own home.
1 comment:
Julie, I find it a blessing to read what you have to say each day, and to see the love that you have for your mom, even at this difficult time. We pray for you each day. Say hi to the kids. Betty and Paul, Laura and Jon.
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